Person and Family Centred Care
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The Person-and Family-Centred Care best practice guideline can be used to enhance the quality of partnerships between health-care providers with individuals accessing care, ultimately improving clinical outcomes. It is important to acknowledge that person- and family-centred care focuses on the whole person as a unique individual and not just on their illness or disease. By viewing the individual through this lens, health-care providers come to know and understand the person’s life story, experience of health, the role of family in the person’s life, and the role they may play in supporting the person to achieve health.
This guideline provides best practice recommendations in three main areas:
• Practice recommendations are directed primarily to those who provide direct care to persons in health-system settings and in the community.
• Education recommendations are directed to those responsible for staff and student education.
• System, organization, and policy recommendations apply to managers, administrators, policy-makers, nursing regulatory bodies, academic institutions, and government bodies.
Recommendations in these three areas are most effective when implemented together. This guideline replaces the previous BPG Client Centred Care.
Registered Nurses’ Association of Ontario (2015). Person-and family-centred care. Toronto, ON, Canada: Author. https://rnao.ca/sites/rnao-ca/files/FINAL_Web_Version_0.pdf This work is funded by the Ontario Ministry of Health and Long-Term Care.
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Person and Family Centred Care Gap Analysis
Organizational assessment tool to assist with implementation and evaluation of the RNAO Person and Family Centred care by comparing current practice to evidence-based practice.
Registered Nurses' Association of Ontario's. (2020). Person- and family-centred gap analysis. Toronto, ON: Long-Term Care Best Practices Program -
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This guide was developed by Saint Elizabeth and Yee Hong Centre for Geriatric Care to share the experiences and insights after implementing person-centred care (PCC) workshops with personal support workers (PSWs) within the two organizations. Reference: Saint Elizabeth. (October 2013). A practical guide to implementing person-centred care education for PSWs in the home, community and long-term care sectors.
Bender, D. (2013). A practical guide to implementing person-centred care education for PSWs in the home, community and long-term care sectors. Retrieved from https://www.saintelizabeth.com/getmedia/3b053be0-3313-45e5-8aea-872781c0b76d/Practical-Guide-for-Implementing-PCC-Education-for-PSWs-October-2013.pdf.aspx -
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This YouTube video is an excellent patient life story reflecting the power of the caring relationship and highlighting the essence of person/family centred care.
Canadian Virtual Hospice. (January 2012.). A story about care. Retrieved from https://www.youtube.com/watch?v=dmjNiMHT8xo -
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BP Bloggers present credible bite-size pieces of information on clinical topics related to LTC.
VanderHorst, M-L. (2013). BP Blogger Myth Busting: Consent and Capacity. -
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This document provides key information on the topic of Consent and Capacity
Wahl, J. (2013). Cheat Sheet on Consent and Capacity. Retrieved from http://www.advocacycentreelderly.org/appimages/file/Cheat%20sheet%20re%20Consent%20-%20June%202013.pdf Source: Advocacy Centre for the Elderly www.acelaw.ca
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The purpose of this brochure is to clarify the circumstances in which a health information custodian may assume implied consent and the options available to a health information custodian where consent cannot be assumed to be implied. Throughout the brochure, appropriate application of the assumed implied consent provisions of PHIPA will be illustrated.
Information and Privacy Commissioner of Ontario. (2015). Circle of Care Sharing Personal Health Information for Health-Care Purposes. Retrieved from: https://www.ipc.on.ca/images/Resources/circle-of-care.pdf -
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This webinar addresses topics such as levels of care, POAs, SDMs and HCC. It explores the legal implications of COVID.
Hospice Palliative Care Ontario. (2020). Complex Medico-legal Issues at the End of Life. Retrieved from https://vimeo.com/465910698/7a29259499
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This document highlights the basics of Consent , Capacity and Substitute Decision-Making
Wahl, J. (2009).Consent, Capacity and Substitute Decision-Making – The Basics. Retrieved from http://www.advocacycentreelderly.org/appimages/file/Consent%20and%20Capacity%20Basics%20-%202009.pdf Source: Advocacy Centre for the Elderly www.acelaw.ca
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Nurses have professional and legal obligations for obtaining consent. The College's Consent practice guideline provides an overview of the major features of the relevant legislation, pertintnt definitions and the steps that nurses need to take to obtain consent.
College of Nurses of Ontario. (2015). Consent. Retrieved from http://www.cno.org/en/learn-about-standards-guidelines/educational-tools/learning-modules/consent/ -
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Une pratique efficace des soins infirmiers dépend d’une relation thérapeutique efficace entre le client et l’infirmière. Cette Ligne directrice porte sur les qualités d’une relation thérapeutique efficace, sur les possibilités qu’elle offre, sur l’état des connaissances et sur les connaissances requises afin de pouvoir travailler efficacement dans une relation thérapeutique. Afin qu’une relation thérapeutique puisse être instaurée avec succès, les valeurs du milieu de travail et les caractéristiques essentielles de l’établissement doivent être en place et doivent être compatibles avec cet objectif. Une feuille de travail sur le niveau de préparation de votre établissement est compris.
Association des infirmières et infirmiers autorisés de l’Ontario. (2002). Établissement de la relation thérapeutique. Toronto, Canada: Autheur. Récupéré: https://rnao.ca/sites/rnao-ca/files/Etablissement_de_la_relation_therapeutique.pdf Ce travail est financé par le Ministère de la Santé et des Soins de longue durée d'Ontario.
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An education booklet designed to explain the Bill of Rights that pertains to every resident living in long-term care in Ontario.
Advocacy Centre for the Elderly (ACE) and CLEO (Community Legal Education Ontario/éducation Juridique Communautarie, Ontario. (2011). Every Resident. Toronto, ON, Canada: CLEO. Retrieved from: http://www.cleo.on.ca/en/publications/everyres
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nA tool to assist LTC homes in completing a gap analysis regarding how they are doing in their home with Person and Family Centred Care from a resident’s viewpoint. This tool was developed by staff at Woodingford Lodge as part of the LTC BPSO® pre-designation journey.
Woodingford Lodge. (2016). Resident Report Card. Woodstock ON. -
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A tool to assist LTC homes in completing a gap analysis regarding how they are doing in their home with Person and Family Centred Care from a front-line viewpoint. This tool was developed by staff at Woodingford Lodge as part of the LTC BPSO® pre-designation journey.
Woodingford Lodge. (2016). General Staff Report Card. Woodstock ON. -
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This document identifies 25 common myths and misconceptions regarding the Health Care Consent Act and Substitute Decisions Act
Wahl, J. (2008). Health Care Consent Act and Substitute Decisions Act- 25 common Misconceptions. Retrieved from http://www.advocacycentreelderly.org/appimages/file/25%20Common%20Misconceptions.pdf Source: Advocacy Centre for the Elderly www.acelaw.ca
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This Improvement Guide contains implementation tools and resources specific to Person Centred Care
Frampton, S., Gil, H., Guastello, S., Kinsey, J., Boudreau-Scott, D., Lepore, M., ... & Walden, P. M. (2010). Long-term Care Improvement Guide. Planetree, Inc. & Picker Institute. Retrieved from https://resources.planetree.org/wp-content/uploads/2015/05/LTC%20Improvement%20Guide%20For%20Download.pdf © 2010 by Planetree (www.planetree.org ) and Picker Institute (www.pickerinstitute.org ). All rights reserved. All rights reserved. Individuals may photocopy all or parts of the Long-Term Care Improvement Guide for educational, not-for-profit uses.
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Les normes d’exercice informent les infirmières de leurs responsabilités et expliquent leur rôle au public. La relation thérapeutique est la pierre angulaire de la profession infirmière. Et son objectif premier est de favoriser la santé et le bien-être des clients. Pour établir et cultiver cette importante relation, l’infirmière fait appel à ses connaissances et compétences professionnelles ainsi qu’à sa compassion.
Ordre des infirmières et infirmiers de l’Ontario. (2006). La relation therapeutique. Toronto, ON, Canada: Auteur. Récupérée de http://www.cno.org/fr/exercice-de-la-profession/normes-et-directives-professionnelles/. Copyright © Ordre des infirmières et infirmiers de l’Ontario, 2009.
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IHI's goal is to usher in a new era of partnerships between clinicians and individuals where the values, needs, and preferences of the individual are honored; the best evidence is applied; and the shared goal is optimal functional health and quality of life. Person centred care is an IHI topic focus with several tools and resources on the website. You need to register to get into IHI.org but it is free for anyone to register.
Institute for Healthcare Improvement. (n.d.). Person and Family-Centred Care. Retrieved from http://www.ihi.org/Topics/PFCC/Pages/default.aspx -
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The health care you receive should be tailored to your unique needs and goals. Person- and family-centred care invites you and your family to partner with your health-care team, helping you make decisions best suited to you.
Registered Nurses’ Association of Ontario. (2017). RNAO Person-and Family-Centred Care - fact sheet. Toronto, ON: Author. -
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This guideline provides recommendations and guidance for use by all clinicians and staff within adult oncology service settings , and for use by patients (and/or family members and caregivers) and their care providers to inform the provision of person-centred care. Although the Person-Centred Care Guideline is cancer specific, many of its principles are relevant to any and all healthcare (and other) professionals that interact with patients, their family members and caregivers.
Cancer Care Ontario. (May). Person-Centred Care Guideline. Retrieved from https://www.cancercare.on.ca/common/pages/UserFile.aspx?fileId=340815 -
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Learn more about the benefits of Person-Centred Care (PCC) with this educational video that defines the fundamental concepts of PCC.
Cancer Care Ontario. (2015, May 26). Person-Centred Care [Video file]. YouTube. Retrieved Sept 14,2015 from https://www.youtube.com/watch?v=NTYRtRNsAko. -
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These guidelines have been developed to promote person-centred language.
Alzheimer Society. (n.d.). Using person-centred language. Retrieved from https://alzheimer.ca/en/take-action/become-dementia-friendly/using-person-centred-language -
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This is the Behavioural Supports Ontario (BSO) website that supports staff with pledging their commitment to Person and Family Centered. Posters and a report are also available to support adaption of Person and Family Centred Approach.
Behavioural Supports Ontario. (n.d.). Pledge: Person-centred language committment statements. retrieved from http://www.behaviouralsupportsontario.ca/Pledge -
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This link takes you to the residents’ bill of rights section 3 of the Long-Term Care Homes Act, 2007, S.O. 2007, c. 8. Government of Ontario.
Ontario Long-Term Care Homes Act. (2007). Retrieved from https://www.ontario.ca/laws/statute/07l08 -
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Information on the importance of person and family centred care and how it can improve the health care experience of clients, families and health providers. There are also resources such as: inventory of person and family centred care; fact sheets that summarize the concept of person and family centred care and a short video demonstrating the difference between “usual care and person centred care”.
Saint Elizabeth Heath Care. (n.d.). Person and family centered care. [website]. https://pfcc.sehc.com/resources © 2015 Saint Elizabeth Health Care Retrieved from https://www.saintelizabeth.com/Home.aspx
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Le but de la présente ligne directrice est de promouvoir les pratiques fondées sur des données probantes, qui sont associées aux soins axés sur les besoins de la personne et de la famille, et d'aider les infirmières et d'autres fournisseurs de soins de santé à acquérir les connaissances et les compétences nécessaires pour améliorer leur pratique de ces soins. Les recommandations aideront les infirmières et d'autres fournisseurs de soins de santé à obtenir le savoir requis pour collaborer et établir des relations habilitantes avec des personnes et leur famille qui font appel aux services de santé, afin d'optimiser la santé et le bien-être au cours de leur vie. Cette approche fondée sur des données probantes, et combinée à une perspective qui reconnaît la place de la personne au centre des soins de santé, permettra d'améliorer l'expérience de cette personne et sa satisfaction à l'égard des soins et des services offerts par le système de santé. Elle s'applique à tous les domaines de la pratique des soins infirmiers, y compris les secteurs clinique, administratif et éducatif.
Cette ligne directrice recommande des pratiques exemplaires dans trois domaines principaux : ■ Les recommandations au sujet des pratiques exemplaires ont été rédigées principalement à l'intention des infirmières et d'autres fournisseurs de soins de santé dans l'équipe interprofessionnelle qui offre des soins directs à des personnes dans les milieux de soins du système de santé (p. ex., soins actifs, soins de longue durée et soins à domicile) et dans la collectivité (p. ex., soins primaires, équipes de santé familiale et santé publique). ■ Les recommandations en matière d'éducation s'adressent à ceux qui sont responsables de la formation du personnel et des étudiants, tels que les éducateurs, les équipes d'amélioration de la qualité, les gestionnaires, les administrateurs ainsi que les établissements d'enseignement universitaire et professionnel. ■ Les recommandations sur le système, l'organisation et la politique s'appliquent à divers publics selon le type de recommandation. Les publics comprennent les gestionnaires, les administrateurs, les décideurs, les organismes de réglementation en soins infirmiers, les établissements d'enseignement et les organismes gouvernementaux. Pour obtenir une efficacité optimale, les recommandations dans ces trois secteurs doivent être mises en œuvre simultanément. Cette ligne directrice remplace le soin centré au client précédent .
Association des infirmières et infirmiers autorisés de l’Ontario. (2015). RNAO Soins axés sur les besoins de la personne et de la famille. Toronto, ON: Autheur. https://rnao.ca/sites/rnao-ca/files/Final_13.pdf Ce travail est financé par le Ministère de la Santé et Ministère des Soins de longue durée de l'Ontario
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At the core of nursing is the therapeutic nurse-client relationship. The College's Therapeutic Nurse-Client Relationship, Revised 2006, practice standard describes the expectations for all nurses in establishing, maintaining and terminating a therapeutic relationship.
College of Nurses of Ontario. (2006). Therapeutic nurse-client relationship (rev ed.). http://www.cno.org/globalassets/docs/prac/41033_therapeutic.pdf -
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This Document contains information pertaining to the basics of Health Care Consent and Advance Care Planning
Advocacy Centre for the Elderly. (2013). Tip Sheet #1 - Health Care Consent and Advance Care Planning: The Basics [PDF]. http://www.advocacycentreelderly.org/appimages/file/Tip%20Sheet%20ONE%20-%20HCC%20and%20ACp%20the%20Basics%20FINAL%20Sept%202013.pdf -
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This document contains tips related to the Hierarchy of Substitute Decision Makers in the Health Care Consent Act
Advocacy Centre for the Elderly. (2013). Tip Sheet # 2: Hierarchy of Substitute Decision Makers (SDMs) in the Health Care Consent Act. [PDF]. http://www.advocacycentreelderly.org/appimages/file/Tip%20Sheet%20TWO%20-%20Hierarchy%20of%20SDMs%20FINAL%20Sept%202013.pdf -
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Doctor Victor Montori speaks about what is shared decision making. (4:06 long)
IHI Open School (2016, August 1). Shared decision making: An interview with Mayo Clinic Professor of Medicine Victor Montori.
[Video file]. https://youtu.be/NECp7TtEzM4